Many of us understand that with life, unfortunately comes death and sometimes it’s not about the end result but the journey you take to get there that really counts. Leaving Life Legacies contains my heart-felt story which also brings a message of hope – that whatever you put your mind to, you can achieve it.
The one question I am always asked over and over again is “how did you cope?” Within the space of two and a half years, I faced the death of my two beautiful baby daughters through Spinal Muscular Atrophy (SMA) and my partner through a tragic road accident right outside our family farm. Despite facing circumstances that would crush many others, I kept going, demonstrating a level of inner strength even at times I didn’t know I had. I have grown to see that the results generated from this experience were powerful and helped me to step up to become the person I was always meant to be.
Leaving Life Legacies springs from my personal experience of tragic loss. It describes the events that shadowed my life and how I have forged forward despite these losses to establish an Association to help parents and individuals who face the same journey with SMA. This book has not been written to elicit sympathy or glory. It simply describes my journey so that others might gain insight into how they can move through times of great challenge and sadness. I sincerely hope you the reader, will come to understand the blessings that spring from these experiences and how they teach us who we really are.
Families who have been impacted by SMA will find understanding, information and insights within these pages. However, Julie’s message is relevant to anyone affected by grief who is seeking a way to move through their loss with dignity and strength.
“Facing the death of your child is one of the hardest things you can experience. In my case, my grief was compounded. I was just beginning to cope again after the first loss and the second happened, then just getting over that and the third occurred. Moving on with my life is not about forgetting my family. It is about moving through grief with a will to survive.”
— Julie Cini
“I looked back over my experience and could see how I implemented strategies and behaviours to help me cope and keep going. I have shared some of these in the hope that others will find something to help them too. It is not about bottling our feelings up inside but doing things like talking it out, listening to others and creating our own happiness. You do have all the skills, knowledge and strength you need to come through.”
— Julie Cini